Researchers at Leeds Teaching Hospitals and the University of Leeds are looking to speak with young people, adults, parents, and carers affected by a birth injury called Erb’s Palsy (brachial plexus birth injury).

Erb’s Palsy is a type of birth injury that affects the nerves controlling movement and feeling in a baby’s shoulder, arm, and hand. It happens when the baby’s neck is stretched during a difficult birth. Some children recover good movement as they grow, but others may have weakness, limited movement, or long-term disability in the affected arm. Many young people and adults continue to live with the effects throughout their lives.

As part of this, they are building a Patient and Public Involvement and Engagement (PPIE) network to ensure that the lived experiences of families truly shape their research from the start.

They are particularly hoping to hear from:

• Young people, adults, and parents affected by Erb’s Palsy
• Families and carers with lived experience
• Individuals from ethnically diverse communities, who are often under-represented in research

The aim is to understand what matters most to affected parties and to work alongside them as they develop future research. Participation can be online, in person, or via telephone/one-to-one conversations depending on preference.

They would especially like to hear from people in ethnically diverse communities affected by the condition. 

You can register for the group here:

https://forms.office.com/e/uq9GcaNYQ7

 

 

Voluntary Action Leeds